Wednesday, February 25, 2009

The struggle continues....

After seeing some improvement, Jack's seizures are going up again in number. He had 10 on Monday and 7 yesterday. We went to see his neurologist yesterday and he feels that the Depakote is the best drug for him. Jack has lost 5 lbs., which is about 10% of his body weight. The doctor felt that his loss of appetite was due to the Topamax. So, we are weaning him off that over the next 4 days and hope to see his hunger come back. He also thought that his paleness was due to the medicine and not caused by anemia. We plan to have blood drawn again today to make sure that Depakote level continues to rise . Please continue to keep Jack in your prayers.

Thursday, February 19, 2009


Since Jack came home from the hospital and his neurologist increased his Depakote, the number of seizures he is having has decreased from around 12-15 to about 3-4 per day. We are hopeful that with more adjustments the number will continue to go down or be eliminated altogether.

Also, if you are interested in Jack's intrathecal baclofen pump and want more information, please visit the Medtronic site.

Wednesday, February 18, 2009

Welcome to "Jack of Our hearts"

Hello everyone and welcome to "Jack of Our Hearts".

(Jack of hearts was taken so we picked the next best thing)

This blog is for all our family and friends who are interested in Jack, his amazing story and his day-to-day struggles.

Jack is the youngest of our three sons and has special needs.

This link on the paws4people website contains a short history of Jack as well as a link if you are interested in donating to the cause. Paws4people has scheduled a service dog for Jack for sometime in late summer/early fall. The cost to raise these dogs is very high and anything you can give would be very much appreciated by Jack and all those who benefit from these incredible animals. The announcement also contains a short story written by our son Jake, who is a journalism major at UNC.

We just returned from our first visit to the prison in WV where these dogs are trained. It was an incredible weekend. For a description of Jack's experience with CAYLIE, please visit Kyria's blog. Kyria is the founder of paws4people.

To see pictures of our visit. You will need a password to access the pictures. Use "paws4people"

You may also view a short video about Jack on youtube.

Well, that's all for now.