Friday, November 20, 2009

Graduation day and catching up...

Hello everyone. Sorry it's been so long but it has been crazeee around here. We had a wonderful trip to WV for CAYLIE's graduation. We even got to bring her home with us for a night and now we are in the process of doing the transfer training. During this time, Karen Owens, the NC trainer will train Lisa and I in handling CAYLIE. Actually, I had previously thought this would only take a few weeks but found out today that it will take 2 - 3 months. She will be able to move in with us permanently in 2-3 weeks (CAYLIE, not Karen) but the actual complete training will take longer. Anyway, we are thrilled to have CAYLIE around almost all the time now and Jack is loving it as well.

A cd is forthcoming from the graduation cermonies but we took a few at the reception.

Mom and Dad at the reception

Kyria - the woman who started it all looking sweet (we know the truth though)

Heidi and Jack

Terry looking thrilled to have his picture taken

The graduate - CAYLIE

Jack and CAYLIE getting close

On a more serious note, Jack continues to struggle with the seizures. He had such as severe one the other day that there were residual effects from it for a couple days afterward. The neurologist ordered an EEG and bloodwork to make sure it wasn't anything more serious. It wasn't. Meanwhile, we were a bit blindsided by the neurosurgeon who calmly suggested that we might want to consider brain surgery over the VNS therapy. Needless to say, we are struggling with that whole thing. Our neurologist, though, was very kind and helpful, but to add another twist; his last day is today!
Goodbye Dr. Nelson, or Dr. James as Jack calls him.